(1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that underwent psychometric assessment. The Aboriginal and Torres Strait Islander Quality Appraisal Tool and a narrative synthesis approach were used. (3) Results: Of 1080 articles, 14 were eligible for review. Most articles focused on a validity assessment of PROMs and surveys, with reliability being less common. Face validity with Aboriginal and Torres Strait Islander communities was reported in most studies, with construct validity through exploratory factor analyses. Methodological design risks were identified in the majority of studies, notably the absence of explicit Indigenous knowledges. Variability existed in the development of PROMs and surveys for Aboriginal and Torres Strait Islander communities. (4) Conclusions: Improvement in inclusion of Indigenous knowledges and research approaches is needed to ensure relevance and appropriate PROM structures. We provide suggestions for research teams to assist in future design.
Aboriginal and Torres Strait Islander; survey; methods
Featured Resources
Phillip Orcher, Victoria J. Palmer and Tyson Yunkaporta
2025 | Australia
This paper describes the health and wellbeing applications of a protocol designed from a Gumbaynggirr Australian First People’s concept, Bigaagarri. The protocol reframes threats to health and wellbeing as part of a communicative system of environmental signals, rather than an individualised, behavioural fight–flight–fear response. Developed by a Muruwari Gumbaynggirr…
Amani Kasherwa, Caroline Lenette, Achol Arop and Ajang Duot
2024 | Australia
The issue of suicide has garnered considerable attention in refugee scholarship, where research examines how unique forced migration and resettlement challenges exacerbate risks and vulnerabilities to suicide. However, there are gaps in understanding the social and cultural factors shaping the lived experience of suicide in refugee communities. Using the…
Antonia R. G. Alvarez
2025 | United States
Performance methodologies take many forms—performative writing, poetic transcription, and co-performative witnessing, to name only a few—and can be both process and product, differentiating and unifying a group between and across differences. As a social work researcher committed to decolonial, liberatory methodologies that make and bring meaning to the communities…
Helena Abolins-Thompson, Kimiora L. Henare, Bridget Simonson, Mark Chaffin, Patrick T. Ellinor, Claire Henry, Mairarangi Haimona, Jake Aitken, Taku Parai, Bianca Elkington, Michael Rongo, Kirsty M. Danielson and Megan P. Leask
2025 | Aotearoa New Zealand
Introduction: Indigenous communities globally are inequitably affected by non-communicable diseases such as cancer and coronary artery disease. Increased focus on personalized medicine approaches for the treatment of these diseases offers opportunities to improve the health of Indigenous people. Conversely, poorly implemented approaches pose increased risk of further exacerbating current inequities…
Featured Resources
Phillip Orcher, Victoria J. Palmer and Tyson Yunkaporta
2025 | Australia
This paper describes the health and wellbeing applications of a protocol designed from a Gumbaynggirr Australian First People’s concept, Bigaagarri. The protocol reframes threats to health and wellbeing as part of a communicative system of environmental signals, rather than an individualised, behavioural fight–flight–fear response. Developed by a Muruwari Gumbaynggirr…
Amani Kasherwa, Caroline Lenette, Achol Arop and Ajang Duot
2024 | Australia
The issue of suicide has garnered considerable attention in refugee scholarship, where research examines how unique forced migration and resettlement challenges exacerbate risks and vulnerabilities to suicide. However, there are gaps in understanding the social and cultural factors shaping the lived experience of suicide in refugee communities. Using the…
Antonia R. G. Alvarez
2025 | United States
Performance methodologies take many forms—performative writing, poetic transcription, and co-performative witnessing, to name only a few—and can be both process and product, differentiating and unifying a group between and across differences. As a social work researcher committed to decolonial, liberatory methodologies that make and bring meaning to the communities…
Helena Abolins-Thompson, Kimiora L. Henare, Bridget Simonson, Mark Chaffin, Patrick T. Ellinor, Claire Henry, Mairarangi Haimona, Jake Aitken, Taku Parai, Bianca Elkington, Michael Rongo, Kirsty M. Danielson and Megan P. Leask
2025 | Aotearoa New Zealand
Introduction: Indigenous communities globally are inequitably affected by non-communicable diseases such as cancer and coronary artery disease. Increased focus on personalized medicine approaches for the treatment of these diseases offers opportunities to improve the health of Indigenous people. Conversely, poorly implemented approaches pose increased risk of further exacerbating current inequities…