Experiences with unethical research practices have caused some American Indian and Alaska Native (AIAN) individuals, organizations, and tribes to mistrust health research. To build trust and repair relationships, current research with AIAN peoples often involves participatory research (PR) approaches. This article assesses community-level protections described in the scientific literature on PR involving AIAN communities. A scoping review search in PubMed and PsychInfo for articles published between January 2000 and June 2017 yielded an AIAN PR article dataset. Of 178 articles, a subset of 23 articles that described aspects of community protections were analyzed for descriptions of community-level protection practices. We identified the presence or absence of a description of four community protection measures in each article: a tribal research department, the development of community-level mechanisms for research regulation if not present, community collaboration throughout the research process, and project employment of a community member. The development of community-level mechanisms for research regulation was described in 39% of the articles. Ninety-one percent of these articles described community collaboration during the research process. Seventeen percent included descriptions of all four community-level protection measures. The extent and consistency to which community-level protections are described is variable; the current literature lacks reporting on community-level protection practices specific to tribal communities.
Indians; North American; Alaska Native; ethics; research; participatory research; tribal sovereignty; scoping review; Indigenous
Featured Resources
Robyn Williams (Noongar), Francine Eades (Noongar), Justine Whitby (Noongar Yamatji), Katiska Davis (Noongar), Christopher McKay (Wiradjuri), Lina Gubhaju, Sandra Eades (Noongar)
2024 | Australia
Indigenous research frameworks are key to enhancing cultural safety for participants, while facilitating capacity building for Indigenous researchers. Indigenous frameworks can address and balance out the potential harms of western research methods. This methodology article describes the experiences of an Indigenous research team in Western Australia (WA) and the developed…
Donna LM Kurtz, Julianne Barry, Peter Hutchinson, Karlyn Olsen, Diana Moar, Rosanna McGregor, Edna Terbasket, Carol Camille, Arlene Vrtar-Huot, Mary Cutts, Kelsey Darnay, Haley Cundy, Mariko Kage, Nikki McCrimmon, Cal Albright, Charlotte Jones
2024 | Canada
Indigenous methodology is a living methodology of doing research in a good way that honours respectful relationships with Indigenous Peoples and communities in which knowledge is co-created and ownership is shared. Guided by Indigenous methodologies, the Urban Indigenous Collective Governance Circle was co-developed for urban Indigenous health research. The Collective…
Adrian Teare, Anne Mease, Claudia Madampage, Alexandra King, Malcolm King
2024 | Canada
Historically, research partnerships between Indigenous communities and academic institutions were often harmful for communities; wise ways of achieving more balanced and just relationships are emerging. This project focuses on the research partnership between Grandmother’s Bay and the University of Saskatchewan with the objectives of providing knowledge on initiating Indigenous community-based…
Ranjan Datta, Teena Starlight (Tsuut’ina First Nation), Daniel Craig Mistaken (Kainai First Nation)
2024 | Canada
In this article, we explore the importance of incorporating Indigenous Elders’ perspectives in developing solutions to climate change. Following relational land-based theoretical frameworks, we learn from Indigenous Elders how they foster a strong sense of community and collective responsibility. Indigenous Elders prioritize inclusivity, social cohesion, and the interconnectedness of humans…
Featured Resources
Robyn Williams (Noongar), Francine Eades (Noongar), Justine Whitby (Noongar Yamatji), Katiska Davis (Noongar), Christopher McKay (Wiradjuri), Lina Gubhaju, Sandra Eades (Noongar)
2024 | Australia
Indigenous research frameworks are key to enhancing cultural safety for participants, while facilitating capacity building for Indigenous researchers. Indigenous frameworks can address and balance out the potential harms of western research methods. This methodology article describes the experiences of an Indigenous research team in Western Australia (WA) and the developed…
Donna LM Kurtz, Julianne Barry, Peter Hutchinson, Karlyn Olsen, Diana Moar, Rosanna McGregor, Edna Terbasket, Carol Camille, Arlene Vrtar-Huot, Mary Cutts, Kelsey Darnay, Haley Cundy, Mariko Kage, Nikki McCrimmon, Cal Albright, Charlotte Jones
2024 | Canada
Indigenous methodology is a living methodology of doing research in a good way that honours respectful relationships with Indigenous Peoples and communities in which knowledge is co-created and ownership is shared. Guided by Indigenous methodologies, the Urban Indigenous Collective Governance Circle was co-developed for urban Indigenous health research. The Collective…
Adrian Teare, Anne Mease, Claudia Madampage, Alexandra King, Malcolm King
2024 | Canada
Historically, research partnerships between Indigenous communities and academic institutions were often harmful for communities; wise ways of achieving more balanced and just relationships are emerging. This project focuses on the research partnership between Grandmother’s Bay and the University of Saskatchewan with the objectives of providing knowledge on initiating Indigenous community-based…
Ranjan Datta, Teena Starlight (Tsuut’ina First Nation), Daniel Craig Mistaken (Kainai First Nation)
2024 | Canada
In this article, we explore the importance of incorporating Indigenous Elders’ perspectives in developing solutions to climate change. Following relational land-based theoretical frameworks, we learn from Indigenous Elders how they foster a strong sense of community and collective responsibility. Indigenous Elders prioritize inclusivity, social cohesion, and the interconnectedness of humans…
